Publications
Access scientific publications, research papers, and reports produced by MDSA and our network of international collaborators advancing MDS knowledge and patient care.
Featured Publications 2024
Global Patient Survey Results
Authors: MDSA Research Committee
Journal: Journal of Hematology & Oncology
Published: March 2024
Comprehensive analysis of patient experiences across 50+ countries, highlighting treatment access disparities and quality of life challenges.
Treatment Access Barriers in Lower-Income Countries
Authors: Global Access Working Group
Journal: The Lancet Haematology
Published: January 2024
Systematic review of barriers to MDS treatment access in developing nations with recommendations for improvement.
Publications by Category
Clinical Research
- Treatment outcomes studies
- Quality of life research
- Diagnostic pathways
- Supportive care interventions
Patient Advocacy
- Access to treatment reports
- Patient survey analyses
- Healthcare policy papers
- Advocacy best practices
Guidelines & Resources
- Clinical practice guidelines
- Patient education materials
- Healthcare professional guides
- Policy recommendations
Recent Publications
| Title | Type | Date |
| MDS Patient Journey: Diagnosis to Treatment | Research Paper | Feb 2024 |
| Caregiver Burden in MDS: A Global Perspective | Research Paper | Jan 2024 |
| Financial Toxicity of MDS Treatment | Policy Report | Dec 2023 |
| Patient-Centered Outcome Measures | Guidelines | Nov 2023 |
| Telemedicine in MDS Care | Best Practices | Oct 2023 |
Annual Reports
MDSA Annual Report 2023
Comprehensive overview of our activities, achievements, and financial information.
Impact Report 2023
Stories and data showing how MDSA is changing lives worldwide.
Submit Your Research
MDSA welcomes submissions of MDS-related research for inclusion in our publications database. Contact our research team to discuss your work.
