The MDS Alliance was founded to address the urgent need for a unified global voice representing people living with Myelodysplastic Syndromes. What began as a collaboration between a handful of patient organizations has grown into an international network spanning multiple continents.

Our founding members recognized that MDS, despite being classified as a rare disease, affects thousands of people worldwide who face similar challenges: delayed diagnosis, limited treatment access, and a lack of awareness among both the public and medical community.

Through the years, we have evolved from sharing best practices among member organizations to actively shaping research priorities, influencing policy decisions, and ensuring that patient perspectives drive improvements in MDS care globally.