Members

Information about MDS Alliance membership.

Member Locations

A Associação Portuguesa Contra a Leucemia (APCL)

Portugal

A Associação Portuguesa Contra a Leucemia (APCL) foi fundada em janeiro de 2002 é uma Instituição Particular de Solidariedade Social. A principal motivação dos Fundadores da APCL radicou na sua…

Abrale

Brazil

The Brazilian Lymphoma and Leukemia Association - ABRALE works across the country to democratize the treatment and quality of life of people with hematologic malignancies to guarantee universality, equity and…

ADL – Association for the Support of Patients with Leukemia and Lymphoma

Portugal

ADL - Association for the Support of Patients with Leukemia and Lymphoma is the oldest Portuguese Association founded in 1997. It was born at the Centro Hospitalar Universitário in São…

aeal

Spain

La Asociación Española de Afectados por Linfoma, Mieloma y Leucemia fue constituida por pacientes el 8 de Octubre de 2002 y es una asociación de ámbito nacional declarada de Utilidad…

AELCLÉS

Spain

AELCLÉS is a non-profit Spanish network of Entities founded in 2009, formed from a group of associations with a shared objective: to help patients and their families affected by blood…

AIL – Associazione Italiana contro Leucemie Linfoma e Mieloma

Italy

AIL nasce nel 1969 assieme ai primi reparti di Ematologia, con lo scopo di finanziare la ricerca scientifica e lo sviluppo di centri specializzati sul territorio nazionale. Nel tempo l’Associazione…
Steering Committee

Aplastic Anemia & MDS International Foundation

United States

The Aplastic Anemia & MDS International Foundation is the world’s leading non-profit health organization dedicated to supporting patients and their families who are living with aplastic anemia, myelodysplastic syndromes (MDS)…
Steering Committee

Aplastic Anemia and Myelodysplasia Association of Canada

Canada

The Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) is a volunteer-run organization supporting patients and caregivers across the country who are living with aplastic anemia, myelodysplastic syndrome (also called…

APLL – Portuguese Leukaemia and Lymphoma Association

Portugal

The Portuguese Leukaemia and Lymphoma Association places the well-being of patients suffering from malignant blood disorders and their families as the main priority. It is thanks to the robustness of…

Association of citizens for rare diseases life with challenges Bitola

North Macedonia

The Association of citizens for rare diseases LIFE WITH CHALLENGES is formed and lead by patients and families facing rare diseases. As a patient organization we advocate for patients rights,…

Associazione Italiana Pazienti con Sindrome Mielodisplastica (AIPaSiM)

Italy

AIPaSiM is a patient-governed society supporting patients with MDS in Italy Our mission is : to be a source of disease and treatment-related knowledge for patients and their caregivers to…

Blodkreftforeningen

Norway

Blodkreftforeningen is a nationwide Norwegian organization for people who have or have had blood cancer-related diseases - as well as their relatives. The association's main goal is to contribute to…

Blood Cancer New Zealand

New Zealand

Since 1977, our work has been made possible through our fundraising events and the generous support we receive from individuals, companies, trusts and grants. We do not receive government funding.…

Cancer Support Community (CSC)

United States

The Cancer Support Community (CSC) is a global non-profit network of 175 locations, including CSC and Gilda's Club centers, hospital and clinic partnerships, and satellite locations that deliver more than…
Steering Committee

Cancer Support Community of Kosovo

Kosovo

Our goals Don’t suffer in silence – Help us help you. Formed in March 2018, at CSCK we aim to raise awareness of cancer and offer support and information to…
Steering Committee

CONNAÎTRE ET COMBATTRE LES MYÉLODYSPLASIES

France

L’association Connaître et Combattre les Myélodysplasies regroupe, depuis juillet 2006, des personnes atteintes de syndrome myélodysplasique et leurs proches. L’association a l’appui du Groupe Francophone des Myélodysplasies (GFM). Objectifs sont:…

Croatian Leukemia and Lymphoma Society

Croatia

The association aims at assisting patients with hematological diseases and developing new research programs and treatment methods. For this purpose it undertakes the following activities: It organizes the treatment of…

DIAGNOZA LEUKEMIE, z. s.

Czech Republic

DIAGNOZA LEUKEMIE, z.s. is a patient-governed society supporting patients with leukemias and blood malignancies and their family in the Czech Republic. Evolving from a chronic myeloid leukemia support organisation -…

ESPERANTRA

Peru

ESPERANTRA is a non-profit organization, founded in 2005 with the purpose of contributing to the reduction of mortality from high risk non-communicable diseases (cancer; high-cost, rare chronic diseases). ESPERANTRA works…

HEMA: Association for help & support of patients with haematological diseases & their caregivers

North Macedonia

The Association HEMA is dedicated to changing outcomes for patients with hematology diseases and giving support to caregivers by strengthening patient advocacy in this area. It aims to deliver tailored…

HematologickyPacient – Association of Patients with Hematological Maligancies

Slovakia

Our mission is to actively represent and promote the interests of patients in the exercise of their right to health care, leading to prolonging life and improving its quality. We…

Hematon Foundation

Netherlands

Hematon is a patient advocacy group for patients with blood cancers, including MDS, lymphomas and stem cell transplantion and their caregivers. We provide information about the diseases (website, magazine, booklets,…

Inter-regional public organization for patients with hematological diseases Most Miloserdiya (Mercy Bridge)

Russia

Our goal To help patients with hematological diseases, including: protecting the rights and legitimate interests of hematological patients, obtaining medical, information, psychological, social, financial, legal and other types of assistance.…

Japan MDS patient support group (JAMPS)

Japan

Japan MDS (Myelodysplastic syndrome) Patient Support Group was established with the support of MDS patients' families and their carers, and the International MDS Foundation with the aim of support patients…

Korea Blood Disease and Cancer Association

South Korea

Korea Blood Disease and Cancer Association(KBDCA) is a non-profit organization that helps patients to cope with the blood disease and cancer through economic and emotional support and work on a…
Steering Committee

LHRM-MDS Patienten-Interessen Gemeinschaft

Germany

It is our aim to help MDS-patients and their families to advocate for themselves. What we want is to provide information on the disease, support patients to find MDS-specialists across…

Linfomas Argentina

Argentina

Linfomas Argentina es una asociación civil sin fines de lucro de pacientes y familiares de pacientes con linfoma, mielofibrosis y síndromes mielodisplásicos en la Argentina. Qué servicios brindamos: Contención y…

LyLe – Patientassosiation for Lymphoma, Leukaemia and MDS (Denmark)

Denmark

LyLe’s story We were founded in sept. 2007 by a small group of individuals – all diagnosed with hematological cancer. Today we are a well established and very active advocacy…

Magyar Onkohematológiai Betegekért Alapítvány (MOHA) – Foundation for Hungarian Oncohaematological Patients

Hungary

Sadly, the Foundation for Hungarian Oncohematology Patients (MOHA) has now ceased its activities, due to lack of funding. The MOHA operated for seven years and provided much needed support to adult…

MDS Contactgroup

Belgium

Wij bieden ondersteuning aan patiënten, de partner en hun omgeving via - informatieve bijeenkomsten, - persoonlijk- en telefonisch contact, - ontmoetings- en ontspanningsactiviteiten, - een tweejaarlijkse infodag. We provide support…
Steering Committee

MDS Foundation, Inc.

United States

The MDS Foundation, Inc. is an international organization established in 1994 by world renowned researchers dedicated to further scientific knowledge, patient support, and education in the myelodysplastic syndromes (MDS). The…

MDS platform Switzerland: a group of LYMPHOME.CH Patientennetz Schweiz

Switzerland

lymphome.ch Patientennetz Schweiz is a non-profit, all volunteer led organisation which was formed in 2001 and became a formal Association in 2005. Our main objective is to provide information and…
Steering Committee

MDS UK Patient Support Group

United Kingdom

We are the only group dedicated solely to MDS in the UK. “Support, Information, Awareness and Campaigns for those affected by Myelodysplastic Syndromes”. The majority of our committee members are…
Steering Committee

Sarah Liptrott – European Institute of Oncology, Milan, Italy

Italy

Sarah Liptrott is a Clinical Research Nurse in the Division of Haematology/BMT at the IEO. She graduated from Liverpool University with a Bachelor of Nursing (Hons), and obtained her Masters…

Slovenian lymphoma and leukemia patient association, L&L

Slovenia

The Slovenian Association of Patients with Lymphoma and Leukemia, L & L, was founded on May 15, 2007. OUR OBJECTIVES: Informing and raising public awareness of lymphomas, leukemia and other…

Suomen Syöpäpotilaat ry – Association of Cancer Patients in Finland

Finland

The Association of Cancer Patients in Finland The Association of Cancer Patients in Finland is a non-governmental organisation founded in 1971. The Association supports cancer patients and provides information about…

TAMID – The Israeli Association for Myelodisplastic Syndrome

Israel

The founders of TAMID are patients, family members and leading haematologists from several medical institutions in Israel, all volunteering to pursue the vision of improving MDS patients' quality of life. We…

The Leukaemia Foundation (Australia)

Australia

The Leukaemia Foundation is the only Australian charity helping those with leukaemia, lymphoma, myeloma, MDS and related blood disorders survive and live a better quality of life. Each day, another…

The Myeloma, Lymphoma & Leukaemia Foundation of Barbados (MLLF)

Barbados

The Foundation was founded in 2002 and is governed by an Executive body of twelve persons. Our Mission is to provide Comprehensive support for persons affected with blood related cancers…

The White Cell Foundation

Nigeria

The White Cell Foundation (TWCF) is a non-profit organization established to create awareness about blood cancers in Nigeria and to provide support for people with blood cancers and their families.…
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