News & Newsletter
Stay informed with the latest MDS news, research updates, advocacy achievements, and community stories from around the world.
Latest News
March 15, 2024
Treatment Access
New MDS Treatment Approved in Europe
European Medicines Agency approves innovative therapy for lower-risk MDS patients with anemia, offering new hope for improved quality of life.
March 8, 2024
Research
Global Patient Survey Results Published
Groundbreaking data from 2,500+ MDS patients across 50 countries reveals significant gaps in treatment access and quality of life support.
February 28, 2024
Advocacy
MDSA Advocacy Wins Coverage Expansion
Following sustained advocacy efforts, three additional countries announce expanded reimbursement for MDS treatments.
Newsletter
Subscribe to our monthly newsletter for:
- Latest MDS research updates
- Treatment and care information
- Advocacy achievements
- Patient stories and experiences
- Upcoming events and webinars
- Member organization highlights
- Clinical trial opportunities
- Resources and support information
Newsletter Archive
| Edition | Date | Highlights | |
| March 2024 | Mar 1, 2024 | EMA approval, Survey results, Patient spotlight | Download PDF |
| February 2024 | Feb 1, 2024 | ASH highlights, Treatment access wins | Download PDF |
| January 2024 | Jan 1, 2024 | Year in review, Looking ahead to 2024 | Download PDF |
| December 2023 | Dec 1, 2023 | Holiday message, Annual achievements | Download PDF |
News by Category
Research & Science
Latest clinical trial results, new discoveries, and scientific advances in MDS.
Advocacy & Policy
Treatment access wins, policy changes, and advocacy campaign updates.
Patient Stories
Inspiring stories from MDS patients and caregivers around the world.
Events & Conferences
Upcoming events, conference highlights, and webinar recordings.
Media Contact
For media inquiries, interview requests, or press materials, please contact our communications team.
