Find Support
You are not alone – connect with others in the MDS community
Living with MDS can feel isolating, but there is a global community of patients, caregivers, and advocates ready to offer support, share experiences, and provide guidance.
Types of Support
Patient Organizations
Connect with local and national MDS patient advocacy groups in your region.
Online Communities
Join forums and social media groups where patients and caregivers share experiences.
Caregiver Support
Resources specifically designed for family members and caregivers of MDS patients.
Helplines
Direct access to trained volunteers who understand MDS and can provide guidance.
Find Local Support
Our member organizations offer support services in different regions worldwide. Select your location to find patient groups near you:
[Interactive map or regional directory to be added]
Can’t Find Support in Your Area?
Contact us and we’ll help connect you with online resources or work to establish support in your region. Email: [email protected]
