Collaboration
Together we’re stronger. MDSA partners with patient organizations, healthcare providers, researchers, and industry to improve outcomes for MDS patients worldwide.
Partnership Opportunities
Patient Organizations
Join our global network of MDS patient groups:
- Share resources and best practices
- Coordinate international campaigns
- Access educational materials
- Participate in global surveys
- Attend member meetings and conferences
Healthcare Providers
Collaborate to improve MDS care:
- Contribute to clinical guidelines
- Participate in patient surveys
- Develop educational content
- Share patient support resources
- Improve diagnosis pathways
Research Institutions
Advance MDS research together:
- Access patient perspectives
- Design patient-centered studies
- Recruit for clinical trials
- Disseminate research findings
- Translate research to practice
Industry Partners
Develop better treatments together:
- Patient advisory boards
- Clinical trial design input
- Educational program development
- Access program support
- Patient outcome research
Current Partners
Global Patient Organizations
MDSA collaborates with over 45 patient organizations across 6 continents, forming the world’s largest MDS patient network.
Medical Societies
- European Hematology Association (EHA)
- American Society of Hematology (ASH)
- International Society of Hematology (ISH)
- National comprehensive Cancer Network (NCCN)
Research Collaborations
- International Working Group for MDS (IWG-MDS)
- MDS Foundation
- European MDS Registry (EUMDS)
- Academic research centers worldwide
Collaborative Projects
Global Patient Survey
Annual survey conducted in partnership with member organizations, collecting data from 2,500+ patients in 50+ countries.
Treatment Access Initiative
Multi-stakeholder collaboration working to improve access to essential MDS treatments worldwide.
MDS Awareness Campaign
Coordinated global campaign with patient groups raising awareness of MDS and early diagnosis.
Clinical Trial Network
Partnership with research centers to connect patients with clinical trials and provide patient input on trial design.
Partnership Principles
All MDSA collaborations are guided by our core principles:
- Patient-Centered: Patient needs and voices at the center of all activities
- Transparency: Open communication about goals, funding, and outcomes
- Independence: Maintaining MDSA’s advocacy independence
- Scientific Rigor: Evidence-based approaches to all initiatives
- Global Equity: Ensuring benefits reach patients worldwide
Start a Collaboration
Interested in partnering with MDSA? We’d love to hear from you.
