Campaigns
Join our global advocacy campaigns working to improve MDS awareness, treatment access, and patient support worldwide. Together, we can make a difference.
Current Campaigns
🎗️ MDS Awareness Week 2024
October 21-27, 2024
Our annual global campaign to raise awareness of myelodysplastic syndromes, promote early diagnosis, and advocate for better patient support.
Campaign Goals
- Reach 10 million people worldwide
- Engage 100+ patient organizations
- Generate media coverage in 50+ countries
- Share 1,000+ patient stories
How to Participate
- Share your MDS story on social media
- Use #MDSAwareness hashtag
- Download awareness materials
- Host a local awareness event
🌍 Global Access to Treatment
Ongoing Campaign
Fighting for equitable access to MDS treatments worldwide, ensuring no patient is left behind regardless of where they live.
Current Focus
- Expanding access in lower-income countries
- Advocating for treatment reimbursement
- Supporting patient assistance programs
- Addressing supply chain challenges
Recent Wins
- 3 new countries: treatment coverage expanded
- WHO: Essential medicines list inclusion
- Regional access programs launched
- Manufacturer agreements secured
🔬 Patient Voice in Research
Ongoing Initiative
Ensuring patient perspectives shape MDS research priorities, clinical trial design, and outcome measures.
Our Work
- Patient advisory boards
- Clinical trial input
- Patient-reported outcomes
- Research priority setting
Impact
- 25+ clinical trials influenced
- Patient outcomes prioritized
- Trial recruitment improved
- Research more relevant to patients
Regional Campaigns
Europe
HTA Reform Campaign
Working to improve health technology assessment processes to ensure faster access to new MDS treatments.
North America
Insurance Coverage Project
Addressing insurance barriers and advocating for comprehensive MDS treatment coverage.
Asia-Pacific
Treatment Access Initiative
Expanding availability of essential MDS treatments across the Asia-Pacific region.
Latin America
Diagnosis & Care Campaign
Improving MDS diagnosis rates and building specialized care capacity.
Past Campaign Successes
| Campaign | Year | Achievement |
| Global Treatment Access | 2023 | Expanded coverage in 8 countries |
| MDS Awareness Week | 2023 | Reached 8.5 million people |
| Clinical Guidelines Update | 2022 | Patient input included in new guidelines |
| Transplant Access Project | 2022 | Improved referral pathways |
Campaign Resources
For Patient Organizations
- Campaign toolkits
- Social media graphics
- Press release templates
- Advocacy training materials
For Patients
- How to share your story
- Social media guide
- Awareness materials
- Advocacy action alerts
Start Your Own Campaign
Want to launch a local or national MDS campaign? MDSA can provide support, resources, and guidance.
