Learn how to build a comprehensive support network for your MDS journey.
The Importance of Support
A diagnosis of MDS can be overwhelming, but you’re not alone. Building a strong support network is crucial for emotional well-being and practical assistance.
Types of Support Available
Medical Support Team
- Hematologist/Oncologist
- Primary Care Physician
- Nurse Coordinator
- Pharmacist
- Social Worker
Family and Friends
Lean on your loved ones while also educating them about MDS. Consider family counseling to help everyone cope with the diagnosis.
Patient Support Groups
Connect with others who understand your experience:
- MDS Alliance Support Groups
- Online forums and communities
- Social media groups
- Local cancer support organizations
Mental Health Support
MDS can take an emotional toll. Consider counseling, support groups, or therapy to help manage anxiety, depression, and stress.
Making the Most of Your Support Network
- Be open about your needs and limitations
- Educate your support network about MDS
- Regular check-ins with your healthcare team
- Join MDS-specific support communities
